Meta faces mounting questions from Congress on health data privacy


Meta is going through mounting questions about its obtain to […]

Meta is going through mounting questions about its obtain to delicate medical info pursuing a Markup investigation that discovered the company’s pixel monitoring device gathering information about patients’ doctor’s appointments, prescriptions, and wellness situations on medical center web sites.

In the course of a Senate Homeland Security and Governmental Affairs Committee listening to on Sept. 14, Sen. Jon Ossoff (D-Ga.) requested that Meta — the parent corporation of Facebook and Instagram — give a “comprehensive and precise” accounting of the professional medical information and facts it retains on users.

“There’s been considerable general public reporting, controversy, and worry about the Meta Pixel merchandise and the chance that its deployment on a variety of medical center systems’ websites, for case in point, has enabled Meta to accumulate non-public wellbeing treatment facts,” Ossoff mentioned.


“We need to have to comprehend, as the U.S. Congress, regardless of whether or not Meta is collecting, has gathered, has entry to, or is storing, professional medical or overall health information for U.S. people,” he additional.

In reaction to Ossoff’s problem about no matter whether Meta has professional medical or wellness treatment facts about its people, Meta Chief Merchandise Officer Chris Cox responded, “Not to my awareness.” Cox also promised to follow up with a written reaction to the committee.


In June, The Markup reported that Meta Pixels on the sites of 33 of Newsweek’s prime 100 hospitals in The us were transmitting the aspects of patients’ doctor’s appointments to Meta when patients booked on the internet sites. We also identified Meta Pixels inside of the password-secured affected person portals of 7 wellbeing devices gathering knowledge about patients’ prescriptions, sexual orientation, and wellbeing ailments.

Previous regulators informed The Markup that the hospitals’ use of the pixel may have violated the Wellbeing Information and facts Portability and Accountability Act (HIPAA) prohibitions from sharing safeguarded well being details.

“Advertisers should not mail sensitive information and facts about men and women by means of our Company Equipment,” Meta spokesperson Dale Hogan wrote to The Markup in an emailed statement. “Doing so is against our guidelines and we teach advertisers on thoroughly placing up Enterprise applications to avert this from happening. Our process is built to filter out most likely sensitive details it is capable to detect.”

Since The Markup’s investigation:

  • As of Sept. 15, 28 of the 33 hospitals have eliminated the Meta Pixel from their health practitioner reserving web pages or blocked it from sending individual facts to Fb. At least 6 of the 7 health techniques experienced also eliminated the pixels from their affected person portals. The Markup reached out to the institutions that taken out the pixel from their internet websites right after our investigation released in June. As of press time, three establishments — Sanford Well being, El Camino Wellness, and Henry Ford Wellness — experienced responded. Read through their statements below.
  • Just one wellbeing technique, North Carolina-centered Novant Overall health, mailed info breach notifications to 3 million customers next The Markup’s report. In the breach notification, Novant Well being mentioned the pixel was extra as portion of a advertising marketing campaign to persuade use of Novant’s MyChart affected person portal, but “the pixel was configured improperly and might have allowed particular personal information to be transmitted to Meta.” On Sept. 16, Novant amended its knowledge breach notification post to point out that Meta informed the service provider that it “generally” filtered out patients’ delicate clinical facts and that it did “not have information and facts to return or destroy.” 
  • The North Carolina lawyer general’s office mentioned it was “actively investigating” the hospitals’ facts sharing just after calls from state lawmakers for a probe.
  • At minimum five class-motion lawsuits have been submitted towards Meta contending that the pixel’s facts assortment on hospital sites broke various state and federal guidelines. Just one, filed versus the company on behalf of a Baltimore-centered MedStar Wellness Program patient, promises that Meta Pixels gathered affected individual information and facts from at minimum 664 distinct hospitals’ websites. The other lawsuits had been brought on behalf of patients of Novant Well being and hospitals in San Francisco, Los Angeles, and Chicago. 

Meanwhile, developments in one more lawful situation recommend Meta might have a tough time offering the Senate committee with a complete account of the delicate well being knowledge it holds on people.

In March, two Meta staff members testifying in a case about the Cambridge Analytica scandal instructed the U.S. District Courtroom for the Northern District of California that it would be incredibly tricky for the organization to monitor down all the info associated with a one consumer account.

“It would get many teams on the advert aspect to keep track of down accurately the—where the data flows,” just one Facebook engineer stated, in accordance to the transcript, which was first documented by The Intercept. “I would be astonished if there’s even a single particular person that can response that slender query conclusively.”

The engineers’ reviews echo the similar worries expressed in a 2021 privateness memo composed by Facebook engineers that was leaked to Vice.

“We do not have an sufficient amount of management and explainability about how our devices use facts, and thus we just can’t confidently make managed coverage adjustments or exterior commitments these kinds of as ‘we will not use X information for Y objective,’” the memo’s authors wrote.

This article was co-posted with The Markup, a nonprofit newsroom that investigates how strong establishments are working with engineering to adjust our modern society. Indication up for its newsletters listed here.

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